<p>Direct aid for disabled comrade.<br>Recaudación de fondos para camarada discapacitado.</p><p>Hola, me llamo Demian, soy discapacitado con Crohn, endometriosis y Long COVID. tengo desnutrición severa y el Long COVID me ha dejado más discapacitado que nunca. Necesito ayuda para pagar los medicamentos y taxis que necesito para ir al médico al no poder apenas caminar por el Long COVID. </p><p>Hi, my name is Demian. I'm disabled with Crohn's disease, endometriosis, and Long COVID. I have severe malnutrition, and Long COVID has left me more disabled than ever. I need help paying for the medication and taxis I need to get to the doctor since I can barely walk due to Long COVID. linktr.ee camaradademian </p><p><a href="/tags/mutualaid/" rel="tag">#mutualaid</a> <a href="/tags/disabilityjustice/" rel="tag">#disabilityjustice</a> <a href="/tags/longcovid/" rel="tag">#longcovid</a> <a href="/tags/yallmasking/" rel="tag">#yallmasking</a> <a href="/tags/covidisnotover/" rel="tag">#covidisnotover</a> @mutualaid @disability </p><p><a href="https://linktr.ee/camaradademian" rel="nofollow"><span class="invisible">https://</span>linktr.ee/camaradademian</a></p>
covidisnotover
<p>💙 It's May 12th, International ME/CFS Awareness Day 💙</p><p>My ME/CFS onset was in Jan 1990<br> <br>🚨 Many recent ME/CFS cases have been triggered by COVID 🚨</p><p>In this thread I plan to post about 3 main things:</p><p>1. My ME/CFS story (briefly)</p><p>2. Helpful resources for patients and clinicians</p><p>3. Advocacy options for patients & allies (friends/family) - mostly US based</p><p>1/n</p><p>@mecfs @longcovid </p><p><a href="/tags/mecfs/" rel="tag">#MEcfs</a> <a href="/tags/longcovid/" rel="tag">#LongCovid</a> <a href="/tags/postcovid/" rel="tag">#PostCovid</a> <a href="/tags/disability/" rel="tag">#Disability</a> <a href="/tags/disabilitysos/" rel="tag">#DisabilitySOS</a> <a href="/tags/covidisnotover/" rel="tag">#CovidIsNotOver</a> <a href="/tags/millionsmissing/" rel="tag">#MillionsMissing</a> <a href="/tags/meawareness/" rel="tag">#MEAwareness</a> <a href="/tags/worldmeday/" rel="tag">#WorldMEDay</a></p>
Finally got the COVID booster today. Apparently our insurance has been refusing to pay for boosters for anyone under 18 so we paid $200 out of pocket for our 4 year old's booster. Here's a hearty boo of shame to Blue Cross Blue Shield of Massachusetts, a real collection of villains who'd deny health care to a child.<br><br><a href="/tags/bluecrossblueshield/" rel="tag">#BlueCrossBlueShield</a> <a href="/tags/bcbs/" rel="tag">#BCBS</a> <a href="/tags/bcbsma/" rel="tag">#BCBSMA</a> <a href="/tags/covid/" rel="tag">#COVID</a> <a href="/tags/covidisnotover/" rel="tag">#COVIDIsNotOver</a> <a href="/tags/maskup/" rel="tag">#MaskUp</a> <a href="/tags/covidbooster/" rel="tag">#COVIDBooster</a> <a href="/tags/healthinsurance/" rel="tag">#HealthInsurance</a> <a href="/tags/ushealthcare/" rel="tag">#USHealthCare</a><br>
Edited 135d ago
<p>2 de mes soignant.e.s sur 3 : « ça existe encore le Covid? ». Oui chères personnes valides, <a href="/tags/covidisnotover/" rel="tag">#CovidIsNotOver</a></p><p>Même dans le milieu médical, ça n’a pas l’air clair.</p>
Edited 226d ago
It looks like we might be in for a significant increase in COVID infections with these two new variants. Now's a good time to start wearing a mask indoors and avoiding crowded indoor events, ventilating indoor spaces, getting a booster, and generally paying attention to COVID levels if you weren't already doing all that. <a href="https://mstdn.science/users/TRyanGregory/statuses/114671085981206502" rel="nofollow" class="ellipsis" title="mstdn.science/users/TRyanGregory/statuses/114671085981206502"><span class="invisible">https://</span><span class="ellipsis">mstdn.science/users/TRyanGrego</span><span class="invisible">ry/statuses/114671085981206502</span></a><br><br><a href="/tags/covid/" rel="tag">#COVID</a> <a href="/tags/covid19/" rel="tag">#COVID19</a> <a href="/tags/pandemic/" rel="tag">#pandemic</a> <a href="/tags/covidisnotover/" rel="tag">#COVIDIsNotOver</a> <a href="/tags/maskup/" rel="tag">#MaskUp</a> <a href="/tags/wearamask/" rel="tag">#WearAMask</a><br>
Got another COVID booster this morning. I've lost count of how many I've had by this point but we're on a regular twice a year cadence now and until there is a real reason to stop.<br><br><a href="/tags/covid/" rel="tag">#COVID</a> <a href="/tags/covid19/" rel="tag">#COVID19</a> <a href="/tags/covidisnotover/" rel="tag">#COVIDIsNotOver</a> <a href="/tags/covidisairborne/" rel="tag">#COVIDIsAirborne</a> <a href="/tags/maskup/" rel="tag">#MaskUp</a> <a href="/tags/covidbooster/" rel="tag">#COVIDBooster</a> <a href="/tags/pandemic/" rel="tag">#pandemic</a><br>
<p>A new "feature" of year six of the ongoing, unchecked covid pandemic is that a large and growing number of my previously covid-serious friends are changing gears to take unprecedented covid exposure risks.They cite a wide range of reasons/justifications/rationalizations.</p><p>My heart is not big enough to hold all the worry. Or loneliness.</p><p>But not gonna lie, it feels more and more like I'm in a tontine. </p><p>@lonelinesscorps <br><a href="/tags/covidisnotover/" rel="tag">#CovidIsNotOver</a> <a href="/tags/pandemicisnotover/" rel="tag">#PandemicIsNotOver</a></p>
Edited 267d ago
"During COVID" is today.<br><br><a href="/tags/covid/" rel="tag">#COVID</a> <a href="/tags/covid19/" rel="tag">#COVID19</a> <a href="/tags/covidisstillhere/" rel="tag">#COVIDIsStillHere</a> <a href="/tags/covidisnotover/" rel="tag">#COVIDIsNotOver</a> <a href="/tags/maskup/" rel="tag">#MaskUp</a> <a href="/tags/pandemic/" rel="tag">#pandemic</a><br>
<p>It's two weeks to the day since US Thanksgiving aka national superspreader day, more than two weeks since T-day outbound travel, less than two weeks since T-day return travel.</p><p>There are going to be a lot of actively contagious people around you right now, many of whom will be asymptomatic.</p><p>Please, please, please be careful.</p><p><a href="/tags/covidisnotover/" rel="tag">#CovidIsNotOver</a> <a href="/tags/pandemicisnotover/" rel="tag">#PandemicIsNotOver</a></p>
Not a single mask in sight. Very disappointing to see this, especially as we're in a COVID uptick. The number of people in photo 1 who have their hands up is probably roughly equal to how many will leave this conference with COVID or some other respiratory illness.<br><br><a href="https://fosstodon.org/users/scala_lang/statuses/115056704676502452" rel="nofollow" class="ellipsis" title="fosstodon.org/users/scala_lang/statuses/115056704676502452"><span class="invisible">https://</span><span class="ellipsis">fosstodon.org/users/scala_lang</span><span class="invisible">/statuses/115056704676502452</span></a><br><br><a href="/tags/dev/" rel="tag">#dev</a> <a href="/tags/tech/" rel="tag">#tech</a> <a href="/tags/coding/" rel="tag">#coding</a> <a href="/tags/conference/" rel="tag">#conference</a> <a href="/tags/scala/" rel="tag">#scala</a> <a href="/tags/scaladays/" rel="tag">#ScalaDays</a> <a href="/tags/covidisnotover/" rel="tag">#CovidIsNotOver</a> <a href="/tags/covidisairborne/" rel="tag">#CovidIsAirborne</a> <a href="/tags/longcovid/" rel="tag">#LongCovid</a> <a href="/tags/maskup/" rel="tag">#MaskUp</a> <a href="/tags/accessibility/" rel="tag">#accessibility</a><br>
Edited 229d ago
<p>For those who are still on the fence about whether to get a COVID booster shot:</p><p>"I'm a Former Surgeon General. Here's Why I'm Getting the COVID Shot This Year."</p><p><a href="https://www.medpagetoday.com/opinion/second-opinions/117395" rel="nofollow" class="ellipsis" title="www.medpagetoday.com/opinion/second-opinions/117395"><span class="invisible">https://</span><span class="ellipsis">www.medpagetoday.com/opinion/s</span><span class="invisible">econd-opinions/117395</span></a></p><p>"I will be rolling up my sleeve again this year. Not because I'm scared -- but because I'm informed."</p><p><a href="/tags/covid/" rel="tag">#COVID</a> <a href="/tags/covid19/" rel="tag">#COVID19</a> <a href="/tags/vaccine/" rel="tag">#Vaccine</a> <a href="/tags/publichealth/" rel="tag">#PublicHealth</a> <a href="/tags/covidisnotover/" rel="tag">#CovidIsNotOver</a></p>
<p>"West Coast governors issue COVID-19 vaccine guidance after CDC concerns"</p><p><a href="https://www.opb.org/article/2025/09/17/west-coast-governors-oregon-california-washington-hawaii-vaccine-covid-flu/" rel="nofollow" class="ellipsis" title="www.opb.org/article/2025/09/17/west-coast-governors-oregon-california-washington-hawaii-vaccine-covid-flu/"><span class="invisible">https://</span><span class="ellipsis">www.opb.org/article/2025/09/17</span><span class="invisible">/west-coast-governors-oregon-california-washington-hawaii-vaccine-covid-flu/</span></a></p><p>"The guidelines recommend broad access to the COVID-19 vaccine for everyone over 6 months of age…"</p><p>"In Oregon, the new guidelines appear to be a step toward eliminating the requirement that patients obtain a prescription to get the 2025-2026 COVID-19 booster shot."</p><p>PDF from OR Health Authority: <a href="https://www.oregon.gov/oha/PH/PREVENTIONWELLNESS/VACCINESIMMUNIZATION/GETTINGIMMUNIZED/Documents/2025-26-Respiratory-Virus-Vaccine-Recommendations-2-pager.pdf" rel="nofollow" class="ellipsis" title="www.oregon.gov/oha/PH/PREVENTIONWELLNESS/VACCINESIMMUNIZATION/GETTINGIMMUNIZED/Documents/2025-26-Respiratory-Virus-Vaccine-Recommendations-2-pager.pdf"><span class="invisible">https://</span><span class="ellipsis">www.oregon.gov/oha/PH/PREVENTI</span><span class="invisible">ONWELLNESS/VACCINESIMMUNIZATION/GETTINGIMMUNIZED/Documents/2025-26-Respiratory-Virus-Vaccine-Recommendations-2-pager.pdf</span></a></p><p><a href="/tags/covid/" rel="tag">#COVID</a> <a href="/tags/vaccine/" rel="tag">#Vaccine</a> <a href="/tags/oregon/" rel="tag">#Oregon</a> <a href="/tags/washington/" rel="tag">#Washington</a> <a href="/tags/california/" rel="tag">#California</a> <a href="/tags/hawaii/" rel="tag">#Hawaii</a> <a href="/tags/covidisnotover/" rel="tag">#CovidIsNotOver</a></p>
Edited 200d ago
<p>Happy to see that Violet Affleck is still doing advocacy work for Long Covid! Many thanks to The Sick Times for this story ❤️</p><p>"Violet Affleck advocates for children with Long COVID, masks, and clean indoor air at United Nations event"</p><p><a href="https://thesicktimes.org/2025/09/23/violet-affleck-advocates-for-children-with-long-covid-masks-and-clean-indoor-air-at-united-nations-event/" rel="nofollow" class="ellipsis" title="thesicktimes.org/2025/09/23/violet-affleck-advocates-for-children-with-long-covid-masks-and-clean-indoor-air-at-united-nations-event/"><span class="invisible">https://</span><span class="ellipsis">thesicktimes.org/2025/09/23/vi</span><span class="invisible">olet-affleck-advocates-for-children-with-long-covid-masks-and-clean-indoor-air-at-united-nations-event/</span></a></p><p>“It is neglect of the highest order to look children in the eyes and say, ‘We knew how to protect you, and we didn’t do it" 💯</p><p><span class="h-card"><a href="https://fedigroups.social/@longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> <br><span class="h-card"><a href="https://fedigroups.social/@mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> </p><p><a href="/tags/covid/" rel="tag">#COVID</a> <a href="/tags/longcovid/" rel="tag">#LongCovid</a> <a href="/tags/pasc/" rel="tag">#PASC</a> <a href="/tags/mecfs/" rel="tag">#MEcfs</a> <a href="/tags/covidisnotover/" rel="tag">#CovidIsNotOver</a> <a href="/tags/airquality/" rel="tag">#AirQuality</a> <a href="/tags/maskup/" rel="tag">#MaskUp</a></p>
<p>Went to an aquarium supply store last night and was delighted to see the staff in N95 masks and all customers still required to wear masks also. I wish I saw more places still doing this. The sign behind the till particularly got me 😂</p><p>“COVID-19 SURCHARGES<br>$50 If we have to explain about masks<br>$100 If we have to hear why you disagree”</p><p>Anyway if you need any fish-related supplies, go support Aquarium Central. 🫧🐠🐟🐠🐟</p><p><a href="/tags/yeg/" rel="tag">#YEG</a> <a href="/tags/covidisnotover/" rel="tag">#CovidIsNotOver</a></p>
<p>Covid turns seven while the public turns their back <a href="https://overmused.thatkatharine.com/covid-turns-seven-while-the-public-turns-their-back/" rel="nofollow" class="ellipsis" title="overmused.thatkatharine.com/covid-turns-seven-while-the-public-turns-their-back/"><span class="invisible">https://</span><span class="ellipsis">overmused.thatkatharine.com/co</span><span class="invisible">vid-turns-seven-while-the-public-turns-their-back/</span></a></p><p><a href="/tags/covidisnotover/" rel="tag">#CovidIsNotOver</a></p>
Edited 10d ago
<p>This Long Covid Awareness Day let us remember the millions who've been disabled by the virus. </p><p>The people who've been forgotten and left behind. </p><p>The folks who have to hide their diagnosis because of the stigma attached to it. </p><p>You think you don't know anyone with Long Covid? </p><p>I promise, you do:</p><p><a href="https://www.disabledginger.com/p/long-covid-awareness-day-2026" rel="nofollow" class="ellipsis" title="www.disabledginger.com/p/long-covid-awareness-day-2026"><span class="invisible">https://</span><span class="ellipsis">www.disabledginger.com/p/long-</span><span class="invisible">covid-awareness-day-2026</span></a></p><p><a href="/tags/longcovid/" rel="tag">#longcovid</a> <a href="/tags/longcovidawarenessday/" rel="tag">#longcovidawarenessday</a> <a href="/tags/covidisairborne/" rel="tag">#COVIDisAirborne</a> <a href="/tags/covidisnotover/" rel="tag">#CovidIsNotOver</a> <a href="/tags/sarscpv2/" rel="tag">#sarscpv2</a> <a href="/tags/disability/" rel="tag">#disability</a> <a href="/tags/ableism/" rel="tag">#ableism</a></p>
<p>Besoin de masques pour te protéger, pour protéger tes proches, pour ton collectif, ou pour un événement en autodéfense sanitaire en région parisienne ?</p><p>Contacte le Mask Bloc Paris Banlieues ! 🐀</p><p>Formulaire de demande : <a href="https://framaforms.org/demande-de-masques-mask-bloc-paris-banlieues-1769597504" rel="nofollow" class="ellipsis" title="framaforms.org/demande-de-masques-mask-bloc-paris-banlieues-1769597504"><span class="invisible">https://</span><span class="ellipsis">framaforms.org/demande-de-masq</span><span class="invisible">ues-mask-bloc-paris-banlieues-1769597504</span></a></p><p><a href="/tags/maskup/" rel="tag">#MaskUp</a><br><a href="/tags/autodéfensesanitaire/" rel="tag">#AutoDéfenseSanitaire</a><br><a href="/tags/covidisnotover/" rel="tag">#CovidIsNotOver</a><br><a href="/tags/covidisairborne/" rel="tag">#CovidIsAirborne</a></p>
<p>En ce moment, on a beaucoup (BEAUCOUP) de masques FFP2 "bec de canard" 🦆 (blancs, élastiques derrière la tête)</p><p>Marque Savoy International, plutôt grands, par boîtes de 50, pas emballés individuellement.</p><p>Tu veux une boîte ? Plusieurs boîtes ? Un carton de 600 masques ? 😁</p><p>Contacte-nous ! <a href="https://framaforms.org/demande-de-masques-mask-bloc-paris-banlieues-1769597504" rel="nofollow" class="ellipsis" title="framaforms.org/demande-de-masques-mask-bloc-paris-banlieues-1769597504"><span class="invisible">https://</span><span class="ellipsis">framaforms.org/demande-de-masq</span><span class="invisible">ues-mask-bloc-paris-banlieues-1769597504</span></a></p><p><a href="/tags/autodefensesanitaire/" rel="tag">#AutoDefenseSanitaire</a> <br><a href="/tags/maskup/" rel="tag">#MaskUp</a> <br><a href="/tags/covidisnotover/" rel="tag">#CovidIsNotOver</a> <br><a href="/tags/covidisairborne/" rel="tag">#CovidIsAirborne</a></p>
<p>Looking for a way to help on Long Covid Awareness Day?</p><p>Solve ME & <a href="/tags/meaction/" rel="tag">#MEAction</a> are looking for volunteers for Advocacy Week 2026 (March 23-27)</p><p>US doctors often have little to no formal education about ME/CFS, Long Covid, or other infection-associated chronic conditions (IACC)</p><p>So the focus this year is on medical education. Details:</p><p><a href="https://solvecfs.org/registration-open-for-me-cfs-advocacy-week-2026/" rel="nofollow" class="ellipsis" title="solvecfs.org/registration-open-for-me-cfs-advocacy-week-2026/"><span class="invisible">https://</span><span class="ellipsis">solvecfs.org/registration-open</span><span class="invisible">-for-me-cfs-advocacy-week-2026/</span></a></p><p>Registration:</p><p><a href="https://docs.google.com/forms/d/e/1FAIpQLSdR4eWbC6OWn1LAFAJhFg_CFz2xOaLYTPzj6kjSDELhAu0fdg/viewform" rel="nofollow" class="ellipsis" title="docs.google.com/forms/d/e/1FAIpQLSdR4eWbC6OWn1LAFAJhFg_CFz2xOaLYTPzj6kjSDELhAu0fdg/viewform"><span class="invisible">https://</span><span class="ellipsis">docs.google.com/forms/d/e/1FAI</span><span class="invisible">pQLSdR4eWbC6OWn1LAFAJhFg_CFz2xOaLYTPzj6kjSDELhAu0fdg/viewform</span></a></p><p>If you volunteer, thank you! ❤️</p><p><span class="h-card"><a href="https://fedigroups.social/@longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span></p><p><a href="/tags/longcovidawarenessday/" rel="tag">#LongCovidAwarenessDay</a> <a href="/tags/covidisnotover/" rel="tag">#CovidIsNotOver</a> <a href="/tags/longcovid/" rel="tag">#LongCovid</a> <a href="/tags/mecfs/" rel="tag">#MEcfs</a></p>
Edited 21d ago
<p>Long Covid Awareness Day post from Solve ME:</p><p><a href="https://solvecfs.org/recognizing-long-covid-awareness-day-resources-for-you/" rel="nofollow" class="ellipsis" title="solvecfs.org/recognizing-long-covid-awareness-day-resources-for-you/"><span class="invisible">https://</span><span class="ellipsis">solvecfs.org/recognizing-long-</span><span class="invisible">covid-awareness-day-resources-for-you/</span></a></p><p>"Long Covid has affected people of all ages and backgrounds.</p><p>For many, it means navigating persistent symptoms that disrupt work, family life, and everyday routines.</p><p>For others, it has been the start of a much longer journey with infection-associated chronic conditions, including illnesses like ME/CFS and related disorders."</p><p>1/n</p><p><span class="h-card"><a href="https://fedigroups.social/@longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p><a href="/tags/longcovidawarenessday/" rel="tag">#LongCovidAwarenessDay</a> <a href="/tags/longcovid/" rel="tag">#LongCovid</a> <a href="/tags/postcovid/" rel="tag">#PostCovid</a> <a href="/tags/pasc/" rel="tag">#PASC</a> <a href="/tags/mecfs/" rel="tag">#MEcfs</a> <a href="/tags/covidisnotover/" rel="tag">#CovidIsNotOver</a></p>