<p>Hi, I'm Sean.</p><p>I'm from the oldest incorporated city in so-called <a href="/tags/canada/" rel="tag">#canada</a>, <a href="/tags/saintjohn/" rel="tag">#SaintJohn</a> - home of the <a href="/tags/irving/" rel="tag">#irving</a> empire.</p><p>I am an iconoclast - staunchly <a href="/tags/antifascist/" rel="tag">#antifascist</a>, <a href="/tags/antiracist/" rel="tag">#antiracist</a>, <a href="/tags/anticapitalist/" rel="tag">#anticapitalist</a>, somewhere on the <a href="/tags/autism/" rel="tag">#autism</a> spectrum, and 3 years into punishing <a href="/tags/longcovid/" rel="tag">#LongCovid</a>. <a href="/tags/wearamask/" rel="tag">#WearAMask</a>!!! </p><p>I've worked the last decade as <a href="/tags/headofsound/" rel="tag">#HeadOfSound</a> at a beautiful heritage <a href="/tags/theatre/" rel="tag">#theatre</a>. Before that I was in <a href="/tags/tech/" rel="tag">#tech</a> for a decade doing <a href="/tags/development/" rel="tag">#development</a> and <a href="/tags/reverseengineering/" rel="tag">#reverseEngineering</a>. I've also worked in <a href="/tags/electronics/" rel="tag">#electronics</a> and other <a href="/tags/audio/" rel="tag">#audio</a> fields. </p><p>I grew up in a musical family and have played in bands since 13. I'm on around 60 albums, have toured canada and the us, and am part of what is likely the most prolific band in canada: <a href="/tags/slugmilk/" rel="tag">#Slugmilk</a>.</p><p>I run a home mixing studio and a small printshop and I have a small "datacentre" which <a href="/tags/selfhosts/" rel="tag">#selfhosts</a> this <a href="/tags/mastodon/" rel="tag">#mastodon</a> instance. </p><p>I'm here on the <a href="/tags/fedi/" rel="tag">#fedi</a> to learn from everyone, and to help others learn. I will help anyone with anything I can.</p><p>I'd love to meet more like-minded friends - don't be shy! </p><p><a href="/tags/freepalestine/" rel="tag">#FREEPALESTINE</a></p><p><a href="/tags/introduction/" rel="tag">#Introduction</a></p>
longcovid
<p>A covid persistente existe.</p><p>O Centro Singular de Investigação em Química Biológica e Materiais Moleculares da Universidade de Santiago de Compostela (Ciqus) lidera um novo proxecto internacional centrado na covid persistente.</p><p><a href="/tags/covid/" rel="tag">#covid</a> <a href="/tags/covidpersistente/" rel="tag">#CovidPersistente</a> <a href="/tags/longcovid/" rel="tag">#LongCovid</a></p>
<p>hola me llamo Demian y necesito ayuda debido a mi situación de discapacidad. Estoy en Málaga, las flores (cerca del centro de salud capuchinos). </p><p>en mayo 2024 tuve COVID y me ha dañado el corazón, el cerebro y literalmente de todo el cuerpo. tengo fatiga crónica y estoy viendo el procedimiento para poder pedir una silla de ruedas eléctrica porque no puedo andar más de dos minutos. </p><p>necesito ayuda para varias cuestiones <br>-comida. por la fatiga crónica no me puedo cocinar y necesitaría ayuda de gente que me haga la comida. Lo único que me sienta bien es pollo, pan y patatas. Le daría mi madre la comida que cocinar. <br>-acompañar con coche citas médicas. Ya sea a la idea o a la vuelta, lo pueda hacerse.</p><p>Entiendo que hay un trabajo detrás de cuidar, se paga tanto los gastos como la ayuda. Entender que estamos en una situación precaria pero se entiende que nada es gratis.</p><p>+34 613 06 47 40</p><p><a href="/tags/malaga/" rel="tag">#malaga</a> <a href="/tags/ayudamutua/" rel="tag">#ayudamutua</a> <a href="/tags/urgente/" rel="tag">#urgente</a> <a href="/tags/liberaciondiscapacitada/" rel="tag">#liberaciondiscapacitada</a> <a href="/tags/longcovid/" rel="tag">#longcovid</a></p>
<p>A research group looked at results for over 97,000,000 people, and found</p><p><p>COVID-19 was associated with a 49% increased risk of new-onset autoimmune-related diseases </p></p><p>and flat out:</p><p><p>SARS-CoV-2 infection increases the risk of autoimmune diseases, particularly those affecting vascular and connective tissue. Risk is amplified by severe infection and attenuated by vaccination</p></p><p>and it's hard to imagine a stronger proof - most countries don't have 97 million people in them!</p><p><a href="https://pubmed.ncbi.nlm.nih.gov/41452424/" rel="nofollow" class="ellipsis" title="pubmed.ncbi.nlm.nih.gov/41452424/"><span class="invisible">https://</span><span class="ellipsis">pubmed.ncbi.nlm.nih.gov/414524</span><span class="invisible">24/</span></a></p><p>(via AJ Leonardi quoting Hannah Davis)</p><p><a href="/tags/covid/" rel="tag">#COVID</a> <a href="/tags/covid19/" rel="tag">#COVID19</a> <a href="/tags/sarscov2/" rel="tag">#SARSCoV2</a> <a href="/tags/longcovid/" rel="tag">#LongCOVID</a> <a href="/tags/science/" rel="tag">#science</a></p>
Edited 78d ago
<p>Vandaag dan de officiële start van mn nieuwe leven. Einde aan 28 jaar werken. Mooie carrière, van alles gedaan, superveel geleerd, hoogte en dieptepunten. En nu onvrijwillig thuis een nieuw leven leren leven. Emotioneel heb ik het afgelopen jaar geleidelijk afscheid genomen, dus vandaag is niet extra moeilijk. Wel een mijlpaal 😏</p><p>My <a href="/tags/longcovid/" rel="tag">#LongCovid</a> life.</p>
<p>Hello to all the ME/CFS and Long Covid activists out there 👋</p><p>Solve ME and <a href="/tags/meaction/" rel="tag">#MEAction</a> are joining forces to work on a medical education initiative for this year's Advocacy Week, March 23-27.</p><p>More details:</p><p><a href="https://solvecfs.org/registration-open-for-me-cfs-advocacy-week-2026/" rel="nofollow" class="ellipsis" title="solvecfs.org/registration-open-for-me-cfs-advocacy-week-2026/"><span class="invisible">https://</span><span class="ellipsis">solvecfs.org/registration-open</span><span class="invisible">-for-me-cfs-advocacy-week-2026/</span></a></p><p>Registration link (Google docs form):</p><p><a href="https://docs.google.com/forms/d/e/1FAIpQLSdR4eWbC6OWn1LAFAJhFg_CFz2xOaLYTPzj6kjSDELhAu0fdg/viewform" rel="nofollow" class="ellipsis" title="docs.google.com/forms/d/e/1FAIpQLSdR4eWbC6OWn1LAFAJhFg_CFz2xOaLYTPzj6kjSDELhAu0fdg/viewform"><span class="invisible">https://</span><span class="ellipsis">docs.google.com/forms/d/e/1FAI</span><span class="invisible">pQLSdR4eWbC6OWn1LAFAJhFg_CFz2xOaLYTPzj6kjSDELhAu0fdg/viewform</span></a></p><p><span class="h-card"><a href="https://fedigroups.social/@mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <br><span class="h-card"><a href="https://fedigroups.social/@longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p><a href="/tags/mecfs/" rel="tag">#MEcfs</a> <a href="/tags/pwme/" rel="tag">#PwME</a> <a href="/tags/longcovid/" rel="tag">#LongCovid</a> <a href="/tags/pwlc/" rel="tag">#PwLC</a> <a href="/tags/solveme/" rel="tag">#SolveME</a> <a href="/tags/meded/" rel="tag">#MedEd</a></p>
<p>This Long Covid Awareness Day let us remember the millions who've been disabled by the virus. </p><p>The people who've been forgotten and left behind. </p><p>The folks who have to hide their diagnosis because of the stigma attached to it. </p><p>You think you don't know anyone with Long Covid? </p><p>I promise, you do:</p><p><a href="https://www.disabledginger.com/p/long-covid-awareness-day-2026" rel="nofollow" class="ellipsis" title="www.disabledginger.com/p/long-covid-awareness-day-2026"><span class="invisible">https://</span><span class="ellipsis">www.disabledginger.com/p/long-</span><span class="invisible">covid-awareness-day-2026</span></a></p><p><a href="/tags/longcovid/" rel="tag">#longcovid</a> <a href="/tags/longcovidawarenessday/" rel="tag">#longcovidawarenessday</a> <a href="/tags/covidisairborne/" rel="tag">#COVIDisAirborne</a> <a href="/tags/covidisnotover/" rel="tag">#CovidIsNotOver</a> <a href="/tags/sarscpv2/" rel="tag">#sarscpv2</a> <a href="/tags/disability/" rel="tag">#disability</a> <a href="/tags/ableism/" rel="tag">#ableism</a></p>
<p>Looking for a way to help on Long Covid Awareness Day?</p><p>Solve ME & <a href="/tags/meaction/" rel="tag">#MEAction</a> are looking for volunteers for Advocacy Week 2026 (March 23-27)</p><p>US doctors often have little to no formal education about ME/CFS, Long Covid, or other infection-associated chronic conditions (IACC)</p><p>So the focus this year is on medical education. Details:</p><p><a href="https://solvecfs.org/registration-open-for-me-cfs-advocacy-week-2026/" rel="nofollow" class="ellipsis" title="solvecfs.org/registration-open-for-me-cfs-advocacy-week-2026/"><span class="invisible">https://</span><span class="ellipsis">solvecfs.org/registration-open</span><span class="invisible">-for-me-cfs-advocacy-week-2026/</span></a></p><p>Registration:</p><p><a href="https://docs.google.com/forms/d/e/1FAIpQLSdR4eWbC6OWn1LAFAJhFg_CFz2xOaLYTPzj6kjSDELhAu0fdg/viewform" rel="nofollow" class="ellipsis" title="docs.google.com/forms/d/e/1FAIpQLSdR4eWbC6OWn1LAFAJhFg_CFz2xOaLYTPzj6kjSDELhAu0fdg/viewform"><span class="invisible">https://</span><span class="ellipsis">docs.google.com/forms/d/e/1FAI</span><span class="invisible">pQLSdR4eWbC6OWn1LAFAJhFg_CFz2xOaLYTPzj6kjSDELhAu0fdg/viewform</span></a></p><p>If you volunteer, thank you! ❤️</p><p><span class="h-card"><a href="https://fedigroups.social/@longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span></p><p><a href="/tags/longcovidawarenessday/" rel="tag">#LongCovidAwarenessDay</a> <a href="/tags/covidisnotover/" rel="tag">#CovidIsNotOver</a> <a href="/tags/longcovid/" rel="tag">#LongCovid</a> <a href="/tags/mecfs/" rel="tag">#MEcfs</a></p>
Edited 22d ago
<p>Long Covid Awareness Day post from Solve ME:</p><p><a href="https://solvecfs.org/recognizing-long-covid-awareness-day-resources-for-you/" rel="nofollow" class="ellipsis" title="solvecfs.org/recognizing-long-covid-awareness-day-resources-for-you/"><span class="invisible">https://</span><span class="ellipsis">solvecfs.org/recognizing-long-</span><span class="invisible">covid-awareness-day-resources-for-you/</span></a></p><p>"Long Covid has affected people of all ages and backgrounds.</p><p>For many, it means navigating persistent symptoms that disrupt work, family life, and everyday routines.</p><p>For others, it has been the start of a much longer journey with infection-associated chronic conditions, including illnesses like ME/CFS and related disorders."</p><p>1/n</p><p><span class="h-card"><a href="https://fedigroups.social/@longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p><a href="/tags/longcovidawarenessday/" rel="tag">#LongCovidAwarenessDay</a> <a href="/tags/longcovid/" rel="tag">#LongCovid</a> <a href="/tags/postcovid/" rel="tag">#PostCovid</a> <a href="/tags/pasc/" rel="tag">#PASC</a> <a href="/tags/mecfs/" rel="tag">#MEcfs</a> <a href="/tags/covidisnotover/" rel="tag">#CovidIsNotOver</a></p>
<p>Edit: Volunteers must register to get a link to Monday's kickoff session!</p><p>Register here: <br><a href="https://docs.google.com/forms/d/e/1FAIpQLSdR4eWbC6OWn1LAFAJhFg_CFz2xOaLYTPzj6kjSDELhAu0fdg/viewform" rel="nofollow" class="ellipsis" title="docs.google.com/forms/d/e/1FAIpQLSdR4eWbC6OWn1LAFAJhFg_CFz2xOaLYTPzj6kjSDELhAu0fdg/viewform"><span class="invisible">https://</span><span class="ellipsis">docs.google.com/forms/d/e/1FAI</span><span class="invisible">pQLSdR4eWbC6OWn1LAFAJhFg_CFz2xOaLYTPzj6kjSDELhAu0fdg/viewform</span></a></p><p>🗣️ ME/CFS Advocacy Week starts on Monday, March 23</p><p>First Zoom call starts at noon Pacific, 3 pm Eastern (will be recorded) </p><p>More details in the participant toolkit, see links below.</p><p>Canva version:</p><p><a href="https://www.canva.com/design/DAHDA3p0_NY/oTfLyW-lmGZIlbDdQfqmoA/view" rel="nofollow" class="ellipsis" title="www.canva.com/design/DAHDA3p0_NY/oTfLyW-lmGZIlbDdQfqmoA/view"><span class="invisible">https://</span><span class="ellipsis">www.canva.com/design/DAHDA3p0_</span><span class="invisible">NY/oTfLyW-lmGZIlbDdQfqmoA/view</span></a></p><p>PDF version:</p><p><a href="https://solvecfs.org/wp-content/uploads/2026/03/Printable-Version-Advocacy-Week-2026-Participant-Toolkit-2.pdf" rel="nofollow" class="ellipsis" title="solvecfs.org/wp-content/uploads/2026/03/Printable-Version-Advocacy-Week-2026-Participant-Toolkit-2.pdf"><span class="invisible">https://</span><span class="ellipsis">solvecfs.org/wp-content/upload</span><span class="invisible">s/2026/03/Printable-Version-Advocacy-Week-2026-Participant-Toolkit-2.pdf</span></a></p><p><span class="h-card"><a href="https://fedigroups.social/@mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <br><span class="h-card"><a href="https://fedigroups.social/@longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p><a href="/tags/uspol/" rel="tag">#USPol</a> <a href="/tags/mecfs/" rel="tag">#MEcfs</a> <a href="/tags/pwme/" rel="tag">#PwME</a> <a href="/tags/longcovid/" rel="tag">#LongCovid</a> <a href="/tags/pwlc/" rel="tag">#PwLC</a> <a href="/tags/postcovid/" rel="tag">#PostCovid</a> <a href="/tags/meded/" rel="tag">#MedEd</a> <a href="/tags/chronicillness/" rel="tag">#ChronicIllness</a></p>
Edited 16d ago